Disclosing an autism diagnosis

Navigating an autism diagnosis can be a complex process for parents and carers.

Deciding to disclose an autism diagnosis at school is a significant decision for many families and individuals. This process involves various considerations, ranging from choosing the right time and person to discuss the diagnosis with to understanding the potential benefits and challenges that may follow. 

Recognising the signs and seeking a diagnosis while at school

Many children start their educational journey without an autism diagnosis. It is often challenging to distinguish typical child development from signs suggesting a neurodevelopmental condition. The school environment can play a crucial role in this early identification. 

One parent shared, "I didn't know until the school counsellor suggested we have our child assessed."

Receiving a diagnosis at school

Receiving an autism diagnosis after a child has already begun schooling can lead to concerns about how the child will be perceived and treated. Parents may worry about their child being unfairly labelled or facing different expectations due to a later diagnosis. These fears are frequently unfounded. Most schools are experienced in supporting a diverse range of learning needs and may already address some of the child's challenges without a formal diagnosis.

The decision to disclose

The decision to disclose a child's autism diagnosis at school should be approached with careful consideration. Each situation is unique, and there isn't a one-size-fits-all answer. Factors to consider include:

• The child’s privacy and comfort: Consider how sharing the diagnosis will affect the child’s emotional wellbeing and privacy. For parents concerned about privacy, sharing the diagnosis with only key school staff might be preferable.
• Need for accommodations: If the child requires specific support or accommodations at school, disclosing the diagnosis becomes necessary to facilitate these supports.
• Building understanding and support: Disclosure can foster a supportive and understanding environment among educators and peers.
• Legal protections and rights: Understanding the educational system's legal rights can also guide disclosure decisions.

When to disclose

Choosing when to disclose an autism diagnosis is crucial. Early disclosure can ensure that the necessary supports are in place when the child begins school, potentially leading to a smoother transition and better educational outcomes. However, it is important to do this when parents or carers feel ready to discuss their child's needs without pressure.

Who to tell

Deciding who needs to know about the diagnosis is another essential step. Typically, this might include:

• Classroom teacher(s): Teachers are directly involved in day-to-day learning and can play a significant role in accommodating and understanding the student’s needs.
• School counsellor or psychologist: These professionals can assist in developing an Individual Education Plan (IEP) and ensure the student receives appropriate emotional and academic support.
• Special education coordinator: Encouraging specialists who understand how to best implement educational strategies for students with autism can enhance the educational experience.

How to disclose

How you disclose the diagnosis also matters. It's important to be clear, concise, and factual, providing information about the child's strengths, challenges, and needs. Here are a few strategies:

• ‍Prepare a written statement: This can help communicate the diagnosis clearly and ensure that all relevant information is covered.‍
• Request a meeting: A face-to-face meeting can allow for a more personalised discussion and immediate feedback.‍
• Develop a collaborative approach: Engage in discussions with school staff to create a supportive environment for the child.

Benefits of disclosing an autism diagnosis

Disclosing an autism diagnosis can lead to several benefits, including:

• Tailored educational strategies: Teachers can modify teaching methods and environments to better suit students' learning styles.
• Access to resources: Schools can provide access to therapies, technologies, and other resources the child might need.
• Increased understanding and inclusion: Disclosure can lead to greater empathy and inclusion from peers and educators, reducing the likelihood of bullying and isolation.

Challenges and considerations

Despite the benefits, disclosure also comes with challenges:

• Privacy concerns: Maintaining the student’s privacy is crucial. It’s important to control who has access to this information.
• Risk of stigma: There is still a stigma associated with autism that can lead to misunderstanding and exclusion.
• Dependency on the school’s response: The effectiveness of disclosure largely depends on how school staff handle the information.
• Social considerations when sharing the diagnosis widely: Deciding who to inform about a child’s autism diagnosis is a personal decision that varies among families. Some are very open, while others prefer a more selective approach, revealing the diagnosis only on a need-to-know basis. It's important to consider how different people might react to the news. Reactions can range from disbelief among family members to acceptance and support from the child’s peers.

The role of social media

While social media offers a platform for support and community engagement, parents should exercise caution when sharing information about their child’s challenges or personal struggles. The potential impact on how a child perceives themselves in the future is a significant consideration. Parents are encouraged to weigh their desire for openness against the child's right to privacy.

Discussing autism with your child

Informing a child about their autism diagnosis is an essential step in helping them understand themselves and their interactions with the world. This knowledge can be empowering, helping them recognise why specific tasks may be more challenging and why they may excel in others. It also introduces them to a broader community of individuals who share similar experiences.

Parents must decide when and how to discuss the diagnosis with their child based on their child’s awareness and sensitivity. Some parents might begin discussing autism almost immediately, while others may wait until the child notices differences between themselves and their peers.

Consulting professionals

Seeking advice from professionals who understand autism can provide valuable insights into the best practices for discussing the diagnosis with a child. Engaging with therapists, counsellors, and educators who have experience with autism can help parents frame the conversation in a constructive and supportive way.

Navigating the disclosure of an autism diagnosis requires sensitivity, careful thought, and a supportive approach. Whether interacting with schools, social circles, or the child, it is crucial to prioritise the child's best interests and personal dignity. With open communication and utilising available resources, parents can ensure that their child receives the understanding and support necessary for a fulfilling life.