Getting the support you need

For parents of children with autism, navigating educational challenges can often seem overwhelming.

When issues arise that aren't effectively addressed within the school environment, it may be necessary to seek external support to ensure your child’s educational and personal needs are met. 

Support and resources 

The role of a parent and carer is undeniably demanding but also incredibly important. Recognising when you need support and knowing where to find the right resources can significantly impact your caregiving journey. 

Caring for a loved one who has been diagnosed with autism and requires additional support can be challenging. It's important to recognise that you are not alone in this journey as a carer. Numerous resources and supports are available to assist you in providing care and managing your own wellbeing. Several key organisations and services in Australia are specifically designed to support you. 

Carer Gateway

Carer Gateway is an initiative by the Australian Government, designed as a central hub for carers across Australia to access practical information and resources. Recognising the crucial role carers play, the government has facilitated this platform to support individuals who care for someone with a disability, chronic illness, or an older person with care needs.

Services offered by Carer Gateway

1. Information and advice: Carer Gateway provides in-depth, easily accessible information on a wide range of topics important for carers. This includes guidance on how to handle everyday care needs, understand respite options and manage the financial and legal aspects of caregiving.
2. Service finder: The platform offers a service finder tool that helps carers connect with local support services. Whether you need emergency respite care, counselling, or support groups, the service finder can direct you to the appropriate services in your area.
3. National helpline: For more direct support, Carer Gateway also offers a national helpline (1800 422 737) that operates from 8 am to 6 pm, Monday through Friday. This helpline is staffed by knowledgeable professionals who can offer advice, provide emotional support, and guide you to the right services.

How to access Carer Gateway

• Website: Visit the Carer Gateway to browse the extensive resources available.
• Helpline: Call the national helpline at 1800 422 737 within operational hours for immediate assistance.

Carers Australia: advocacy and support at the state level

Carers Australia is the national peak body that represents Australia’s carers. Its focus is on advocating for and providing support to individuals who care for someone with a disability, chronic illness, or an ageing family member. Each state and territory in Australia has its own Carers Association under the umbrella of Carers Australia, ensuring that support and resources are tailored to the specific needs of carers in different regions.

Key offerings of Carers Australia

1. Information and resources: Carers Australia provides comprehensive information and resources addressing the needs and challenges of carers. These include educational materials, guidance on navigating health and social care systems, and information on carers' rights and entitlements.
2. Counselling and support: Recognising the emotional and physical toll caregiving can have, Carers Australia offers access to free counselling sessions. These sessions are designed to help carers manage stress, cope with challenges, and maintain their mental health.
3. Advocacy: As an advocacy group, Carers Australia plays a crucial role in influencing policies and initiatives that affect carers. They ensure that carers' voices are heard at the national and state levels, advocating for better support systems and recognising carers' contributions.
   

How to connect with Carers Australia

• Website: Visit Carers Australia to learn more about their services and how they can support you.
• State associations: Contact your local Carers Association via the links provided on the Carers Australia website to access state-specific support and resources.

External support - therapies

Educational psychologists

Educational psychologists specialise in understanding the science behind how people learn. They can assess your child’s needs through detailed observations and standardised testing. These professionals can identify specific barriers to learning and suggest practical interventions. Their assessment can also support applications for additional support within the school, such as an Individual Education Plan (IEP) or help parents advocate for special accommodations.

Occupational therapy

Occupational therapists (OTs) can assess and intervene in several areas impacting a child's school life, including sensory processing difficulties, motor skills, and organisational challenges. An OT can work directly with your child to develop these skills and recommend changes in the classroom to accommodate their needs, such as seating arrangements or sensory tools like fidget gadgets.

Speech and language therapy

Communication challenges are common among children with autism, which can significantly affect their school experience. A speech and language therapist can work with your child to enhance their communication skills. This therapy can be pivotal in helping children express their needs and interact more effectively with peers and teachers.

Behavioural therapists

Applied Behaviour Analysis (ABA) therapists or other behavioural specialists can provide targeted strategies to manage behavioural challenges that may interfere with learning. These professionals help develop positive behaviours and reduce problems, making the school environment more accessible for your child.

Autism support groups and charities

Local and national autism support groups can be invaluable resources. These organisations often provide access to educational workshops, training sessions for parents, and social groups where children can meet peers who face similar challenges. Additionally, they can connect you with experienced parents and professionals who can offer guidance based on their experiences and successes. Groups such as Autism Awareness Australia often host events and provide resources to help you navigate educational challenges.

Social skills groups

Many organisations and private therapists run social skills groups, which can benefit children with autism who struggle with social interaction. These groups provide a structured opportunity to learn and practise social skills in a safe environment, with the guidance of a professional.

Advocacy services

Navigating the educational system and ensuring your child receives the appropriate support can be complex. Advocacy services can guide you through the process of securing the necessary accommodations and support for your child. Advocates are knowledgeable about educational rights and can assist in communication between families and schools to ensure that children with autism receive a fair educational opportunity.

Private tutoring

Sometimes, additional academic support outside of school hours can help. Private tutors who have experience with autism can provide one-on-one teaching tailored to your child’s unique learning needs. This can help fill any gaps in understanding and reinforce learning in the most effective way for them.

Transition programs

As children grow, transitions can become major hurdles, especially when moving from primary to secondary school, or from secondary school to higher education. Transition programs specifically designed for children with autism can ease these changes by preparing them in advance for new settings and expectations.