Living at home options

Living with family can be a highly beneficial arrangement for many autistic individuals, offering essential support and stability. 

This setup allows for a familiar environment and the presence of trusted carers, which can significantly enhance the quality of life for autistic individuals. Families can access various in-home support services to help manage care and provide respite when needed.

The benefits of living at home with family

Stability and familiarity

One of the main advantages of living with family is the stability and familiarity it provides. Autistic individuals often thrive in environments where routines are predictable and changes are minimal. The family home, with its established routines and familiar faces, can offer a sense of security and comfort that is difficult to replicate elsewhere

Personalised care

Families have a special advantage when it comes to personalised care tailored to the specific needs of their autistic adult child. Unlike professional care providers who may have limited time or resources, family members can devote more attention to understanding and accommodating individual preferences and needs. This personalised approach can lead to better outcomes in terms of both emotional and physical wellbeing.‍

Emotional support

‍The emotional support provided by family members is invaluable. Living with family ensures that autistic adults have a consistent support system, which can help reduce feelings of isolation and anxiety. Family members can offer encouragement, understanding, and companionship, all contributing to a positive living environment.

Access to in-home support services

Families can access various in-home support services designed to assist with the care of autistic adults. These services can include respite care, which provides temporary relief for primary carers, as well as specialised therapies and educational support. By using these resources, families can ensure that their autistic child receives comprehensive care while also maintaining their own wellbeing.

The challenges of living at home with family

Carer stress and burnout

While living with family offers many benefits, it can also present challenges, particularly for primary carers. The demands of providing constant care can lead to stress and burnout, which can negatively impact the overall family dynamic. It is important for carers to seek support and take breaks when needed to maintain their health and wellbeing.

Balancing needs

Balancing the needs of the autistic adult child with those of other family members can be challenging. Ensuring that everyone’s needs are met requires careful planning and open communication. Families may need to establish clear routines and boundaries to manage daily responsibilities effectively.

Financial considerations

Providing care for an autistic family member can be financially demanding. Costs associated with therapies, medical care, and specialised equipment can add up quickly. Families may need to explore financial assistance programs and community resources to help offset these expenses. 

Social isolation

Autistic adults living at home may experience social isolation, particularly if they have limited opportunities to interact with peers. Families can help by finding social groups, clubs, or activities that align with the individual’s interests and abilities.

Strategies for successful family living

Establishing routines

Creating and maintaining a structured routine is essential for many autistic adults. Routines help provide a sense of predictability and security. Families should work together to establish daily schedules that include time for activities, meals, therapies, and relaxation.

Open communication

Open and honest communication is important in managing the complexities of family living. Regular family meetings can provide a platform for discussing concerns, planning activities, and addressing any issues. Ensuring that everyone has a voice in these discussions can create a sense of inclusion and cooperation.

Seeking professional support

Professional support can play an important role in managing the challenges of living with an autistic family member. This support can come in the form of therapists, counsellors, or support groups. These professionals can offer guidance, coping strategies, and emotional support for both the autistic individual and their family members.

Utilising respite care

Respite care is a valuable resource for families, providing temporary relief for primary carers. This service allows carers to take a break, rest, and recharge, knowing that their loved one is in capable hands. Utilising respite care can help prevent burnout and ensure that carers remain healthy and effective in their roles.

Financial planning

Effective financial planning is essential for managing the costs associated with caring for an autistic adult family member. Families should explore all available financial assistance programs, such as government benefits, grants, the NDIS and community resources. Creating a budget and seeking advice from a financial planner can help you manage expenses and plan for the future.

Resources for families

Government support

Various government programs offer support for families caring for autistic individuals. These programs can provide financial assistance, access to specialised services, and other resources to help manage care. Families should research and apply for any programs for which they are eligible. You can find more information on NDIS and Medicare support for home and living here.

Community organisations

Community organisations can be a valuable source of support and information. These organisations often offer support groups, educational workshops, and advocacy services. Connecting with other families through these organisations can provide a sense of community and shared experience.

Online resources

The internet is a rich source of information and support for families. Many websites, forums, and social media groups offer advice, resources, and community connections. Families can use these online resources to stay informed about new developments, share experiences, and seek support from others in similar situations. You can discover tips for safely navigating social media and the online world here.

Creating a supportive home environment

Sensory-friendly spaces

Many autistic individuals have unique sensory needs and sensitivities. Creating sensory-friendly spaces within the home can help accommodate these needs. This may include quiet areas for relaxation, sensory toys or tools, and modifications to lighting and noise levels.

Promoting independence

Encouraging independence is an important aspect of supporting autistic individuals. Families can help by teaching life skills like cooking, cleaning, and self-care. Providing opportunities for autonomy and decision-making can boost confidence and self-esteem.

Positive reinforcement

Positive reinforcement is an effective strategy for encouraging desired behaviours and skills. Families should focus on recognising and celebrating achievements, no matter how small. This approach can help build confidence and motivate autistic individuals to continue developing their skills.

Building social skills

Social skills are essential for interacting with others and forming relationships. Families can support the development of social skills by providing opportunities for social interaction, such as meetups, group activities, and community events. Practising social scenarios at home can also help build confidence in social settings.

Living with family can provide a supportive and nurturing environment for autistic individuals, offering stability, personalised care, and emotional support. While there are challenges to this arrangement, families can overcome them by establishing routines, seeking professional support, and utilising available resources. By creating a supportive home environment and fostering open communication, families can ensure that their autistic members thrive and achieve their full potential.

Remember, families aren’t alone in this journey; there are plenty of resources and support systems to help. By using these resources and working together, families can create a happy and fulfilling home for everyone.